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The wean continues…
We are on Day 11 of the wean. So far River is getting about 40% of her daily needs through her tube everyday, this is maintaining a minimum hydration and seems to be keeping her very stable. She’s been...
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Weaning: Week 3
To begin, this has been an amazing 3 weeks. I can’t believe that just three weeks ago we were 100% tube feeding our daughter, and she was still vomiting on a daily basis. River has gone through an...
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Weaning: Week 8
The last 2 weeks have been eventful for us in this adventure of weaning. River has had 5 appointments within the last 2 weeks, she’s had and gotten over a double-ear infection, started...
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The Appetite Experiment
Acceptance and perseverance are the words that come to mind lately with our weaning trial. Lately I’ve had to be the one accepting. Accepting that River is who she is right now, and if she can’t eat...
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The Periactin Reaction
Finally! Yes an update has come! I’ve been so busy lately, it’s hard to get 5 minutes! She "smiles" for the camera River has just completed 3 weeks on Periactin. She had the first week at half dose,...
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Many little updates
Sunny Spring Day! So we have a few things to get caught up on with River! Over the last few weeks River has been to Seattle Children’s Growth and Feeding Dynamics clinic; her 9 month check up with...
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Summertime Tubie
It’s been a while since I was last here! I have been crazy busy with my spring quarter of school, but that has finally been completed! It’s summer time almost officially, and we are preparing to kick...
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A Busy Summer
It’s been a very busy summer with the whole family! River and Ewan and I spent a near month in Utah visiting our family and friends. We traveled from Washington through Idaho, into Montana, down...
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Intensive Feeding Clinic @ Seattle Children’s Hospital
There’s no doubt about it, everyone had high hopes. Can’t deny that everyone prays and wishes for miracles; of course they do. We did, our family did, our friends did. For some I know this clinic has...
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Surgery postponed & tummy troubles
So this week we found out that we will have to postpone her surgery that was scheduled next week on her eyelid. Unfortunately silly insurance plans get in the way often. We got it all sorted out, but...
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Going Rogue
It’s been nearly 4 months since our 2nd wean attempt, in September, at Seattle Children’s. Since then we’ve had to reevaluate our thoughts and feelings regarding weaning and tube feeding with River....
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3 months of summer gone by…
Oregon coast, July It’s been 3 months to the day since I posted, a busy last 3 months! I’ve been suffering from blog-aversion, but I’m going to try to give it a go. River started off the summer with a...
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The end of another year
It’s the last day of the year and I’m finally inspired to write a post, a little catch up on the life of River. Now recently we had a check-in with the dietician back in November, and at that time we...
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Blended Feelings
Yes, I’ve been avoiding you. The blog has always been a place where I can dish about River’s life and spill my guts out all over so I feel better. I, hopefully, have helped a parent or two. But I...
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One Mad Cat
Back in the day….when I had a quick-growing boy, the frustrations and expense of constantly shrinking clothes and shoes was kind of a pain. Perspective is a wonderful thing, and when River starts...
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Day in, day out
I am not a frequent blogger, not anymore. As I ponder why I choose not to update the blog on the daily things or the once in a while things, I wonder where it’s going? I shockingly get 20-40 hits a...
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When(Wean) in Bend, Oregon
It’s been another stretch of time between posts, and again, a lot has happened and a lot has changed. Love me some bullet points. THE MOVE: Right after posting last in March 2018, we decided to move to...
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